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National Institutes of Health

National Institutes of Health
Secretary's  Advisory Committee
 on Genetics, Health and Society


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NOTE: The caption text is a record of the close captioning offered to support the video. It is NOT a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH website in due course.

Secretary's Advisory Committee on Genetics, Health, and Society

Monday, October 18, 2004

Fifth Meeting
October 18-19, 2004
Bethesda, MD

AGENDA

8:30 a.m. 8:35 a.m.
Welcome and Presentation of Certificates of Appreciation
(Real Video)
Raynard Kington, M.D., Ph.D.
Deputy Director, National Institutes of Health

8:35 a.m. 8:40 a.m.
Remarks of the New SACGHS Chair
(Real Video)
Reed V. Tuckson, M.D.
SACGHS Chair

8:40 a.m. 9:00 a.m.
The Importance of Family History in Health
(Real Video)
Alan Guttmacher, M.D.
Deputy Director, National Human Genome Research Institute

9:00 a.m. 12:45 p.m.
Perspectives on Genetic Discrimination

9:00 9:15 
Introduction
(Real Video)
Agnes Masny, R.N., M.P.H., M.S.N.
Chair, SACGHS Task Force on Genetic Discrimination

9:15 10:25
Panel One:  Perspectives of Members of the Public

10:25 10:35
Follow-up Questions for Panel One (Real Video)

10:35 10:45 (BREAK)
 
10:45 11:15
Panel Two:  Health Care Provider Perspectives (Real Video)

11:15 11:25
Follow-up Questions for Panel Two (Real Video)

11:25 12:05
Panel Three:  Additional Stakeholder Perspectives (Real Video)

12:05 12:15
Follow-up Questions for Panel Three (Real Video)

12:15 1:15
Roundtable Discussion with Three Panels (Real Video)
Facilitators:  Ms. Masny and Dr. Tuckson

1:15 p.m. 1:30 p.m. (BREAK)

-- Working Lunch --

1:30 p.m. 4:30 p.m.
Committee Review and Discussion of SACGHS Revised Draft Reporton Coverage and Reimbursement of Genetic Tests and Services

1:30 1:45
Report of the Deliberations of the Coverage and Reimbursement Task Force (Real Video)
Cynthia Berry, J.D.
Chair, Coverage and Reimbursement Task Force

1:45 2:15
Evaluation of Genomic Applications in Practice and Prevention:
Implementation and Evaluation of a Model Approach
(Real Video)
Linda Bradley, Ph.D.
Geneticist, Office of Genomics and Disease Prevention
Centers for Disease Control and Prevention

2:15 2:30  (BREAK)

2:30 4:38
Review and Discussion of Revised Draft Report
(Real Video)

4:38 p.m. 5:00 p.m.
Public Comments

ADJOURN

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