Secretary's Advisory Committee on Genetics, Health, and Society
Monday, October 18, 2004
October 18-19, 2004
8:30 a.m. – 8:35
Welcome and Presentation of
Certificates of Appreciation (Real Video)
Raynard Kington, M.D., Ph.D.
Deputy Director, National Institutes of Health
8:35 a.m. – 8:40 a.m.
Remarks of the New SACGHS Chair (Real Video)
Reed V. Tuckson, M.D.
8:40 a.m. – 9:00 a.m.
The Importance of Family History
in Health (Real Video)
Alan Guttmacher, M.D.
Deputy Director, National Human Genome Research Institute
9:00 a.m. – 12:45 p.m.
Perspectives on Genetic
9:00 – 9:15
Introduction (Real Video)
Agnes Masny, R.N., M.P.H., M.S.N.
Chair, SACGHS Task Force on Genetic Discrimination
9:15 – 10:25
Panel One: Perspectives
of Members of the Public
10:25 – 10:35
Follow-up Questions for Panel One (Real
10:35 – 10:45 (BREAK)
10:45 – 11:15
Panel Two: Health
Care Provider Perspectives (Real
11:15 – 11:25
Questions for Panel Two (Real
11:25 – 12:05
Three: Additional Stakeholder
- Kathy Hudson, Ph.D.
Director, Genetics and Public Policy Center (Real
- Jane Massey Licata, J.D., Ph.D.
Partner, Licata & Tyrrell P.C.
Adjunct Professor, Rutgers School of Law-Camden (Real
Armstrong, M.D., M.P.H.
Senior Medical Director, Women's Health, Aetna
America's Health Insurance Plans (Real
- Mike Aitken
- Society for Human Resources Management (Real
12:05 – 12:15
Questions for Panel Three (Real
12:15 – 1:15
Discussion with Three Panels (Real
Facilitators: Ms. Masny and Dr. Tuckson
1:15 p.m. – 1:30 p.m. (BREAK)
-- Working Lunch --
1:30 p.m. – 4:30 p.m.
Review and Discussion of SACGHS Revised Draft
Reporton Coverage and Reimbursement of Genetic
Tests and Services
1:30 – 1:45
of the Deliberations of the Coverage and Reimbursement
Cynthia Berry, J.D.
Chair, Coverage and Reimbursement Task Force
1:45 – 2:15
Evaluation of Genomic Applications
in Practice and Prevention:
Implementation and Evaluation of a Model
Approach (Real Video)
Linda Bradley, Ph.D.
Geneticist, Office of Genomics and Disease Prevention
Centers for Disease Control and Prevention
2:15 – 2:30 (BREAK)
2:30 – 4:38
and Discussion of Revised Draft Report (Real
4:38 p.m. – 5:00 p.m.