[NIH SACGHS Webcasts]
[18 Oct 2004]
[19 Oct 2004]
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[14june2004]
[1 March 2004]
[2 March 2004]
[23 Oct 2003]
[22 Oct 2003]
[11 June 2003]
[12 June 2003]

• Morning Sessions before break (Real Video)
• Morning Sessions after break (Real Video)
• Afternoon Sessions after lunch (Real Video)
• Afternoon Sessions after break (Real Video)
• Videos are also linked in the AGENDA

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NOTE: The caption text is a record of the close captioning offered to support the video. It is NOT a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH website in due course.

Secretary's Advisory Committee on Genetics, Health, and Society

Monday, October 18, 2004

Fifth Meeting
October 18-19, 2004
Bethesda, MD

AGENDA

8:30 a.m. – 8:35 a.m.
Welcome and Presentation of Certificates of Appreciation (Real Video)
Raynard Kington, M.D., Ph.D.
Deputy Director, National Institutes of Health

8:35 a.m. – 8:40 a.m.
Remarks of the New SACGHS Chair (Real Video)
Reed V. Tuckson, M.D.
SACGHS Chair

8:40 a.m. – 9:00 a.m.
The Importance of Family History in Health (Real Video)
Alan Guttmacher, M.D.
Deputy Director, National Human Genome Research Institute

9:00 a.m. – 12:45 p.m.
Perspectives on Genetic Discrimination

9:00 – 9:15 
Introduction (Real Video)
Agnes Masny, R.N., M.P.H., M.S.N.
Chair, SACGHS Task Force on Genetic Discrimination

9:15 – 10:25
Panel One:  Perspectives of Members of the Public

• Heidi Williams (Real Video)
• Phaedra Malatek (Real Video)
• Rebecca Fisher, M.L.I.S. (Real Video)
• Tonia Phillips (Real Video)
• Paula Funk (Real Video)
• Maria Carolina Hinestrosa (Real Video)
• Phil Hardt (Real Video)

10:25 – 10:35
Follow-up Questions for Panel One (Real Video)

10:35 – 10:45 (BREAK)
 
10:45 – 11:15
Panel Two:  Health Care Provider Perspectives (Real Video)

• Jeff Shaw, M.S. - Oncology Genetics Counselor, Penrose Cancer Center (Real Video)
• Donald W. Hadley, M.S.- Associate Investigator, Social and Behavioral Research Branch National Human Genome Research Institut (Real Video)
• Mark Brantly, M.D. - Professor of Medicine, University of Florida Health Sciences Center (Real Video)

11:15 – 11:25
Follow-up Questions for Panel Two (Real Video)

11:25 – 12:05
Panel Three:  Additional Stakeholder Perspectives (Real Video)

• Kathy Hudson, Ph.D.
  Director, Genetics and Public Policy Center (Real Video)
• Jane Massey Licata, J.D., Ph.D.
  Partner, Licata & Tyrrell P.C.
  Adjunct Professor, Rutgers School of Law-Camden (Real Video)
• Joanne Armstrong, M.D., M.P.H.
  Senior Medical Director, Women's Health, Aetna
  America's Health Insurance Plans (Real Video)
• Mike Aitken - Society for Human Resources Management (Real Video)

12:05 – 12:15
Follow-up Questions for Panel Three (Real Video)

12:15 – 1:15
Roundtable Discussion with Three Panels (Real Video)
Facilitators:  Ms. Masny and Dr. Tuckson

1:15 p.m. – 1:30 p.m. (BREAK)

-- Working Lunch --

1:30 p.m. – 4:30 p.m.
Committee Review and Discussion of SACGHS Revised Draft Reporton Coverage and Reimbursement of Genetic Tests and Services

1:30 – 1:45
Report of the Deliberations of the Coverage and Reimbursement Task Force (Real Video)
Cynthia Berry, J.D.
Chair, Coverage and Reimbursement Task Force

1:45 – 2:15
Evaluation of Genomic Applications in Practice and Prevention:
Implementation and Evaluation of a Model Approach (Real Video)
Linda Bradley, Ph.D.
Geneticist, Office of Genomics and Disease Prevention
Centers for Disease Control and Prevention

2:15 – 2:30  (BREAK)

2:30 – 4:38
Review and Discussion of Revised Draft Report (Real Video)

4:38 p.m. – 5:00 p.m.
Public Comments

ADJOURN

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