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National Institutes of Health

National Institutes of Health
Secretary's  Advisory Committee
 on Genetics, Health and Society

Morning Session before lunch (Real Video)

Afternoon Session after lunch (Real Video)

Videos are also linked in the AGENDA

NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH web site in due course.

Secretary’s Advisory Committee on Genetics, Health, and Society

Tuesday, March 1, 2005

Showcase of Presentations and Videos from today's webcast


8:30 a.m. – 2:45 p.m. Large Population Studies: The Opportunities and Challenges

8:30 – 9:00 Conceptual Basis for Large Population Studies of Human Genetic Variation and Common Disease (Real Video & Presentation)
David Goldstein, Ph.D.
Wolfson Professor of Genetics
University College London

9:00 – 9:30 Public Health Perspective on Large Population Studies of Human Genetic Variation, the Environment, and Common Disease (Real Video & Presentation)
Gilbert S. Omenn, M.D., Ph.D.
Professor of Internal Medicine, Human Genetics and Public Health University of Michigan

9:30 – 10:00 Overview of International and National Large Population Studies (Real Video & Presentation)
Teri Manolio, M.D., Ph.D.
Director Epidemiology and Biometry Program
National Heart Lung and Blood Institute

10:00 a.m. – 10:15 a.m. BREAK

10:15 – 10:45 Ethical, Legal and Social Issues of Large Population Studies  (Real Video)
Bartha Knoppers, Ph.D., L.L.B.
Professor of Law Canada Research Chair in Law and Medicine University of Montreal

10:45 – 11:15 Dichotomy Between Social Identity and Ancestry in Large Population Studies (Real Video)
Charles N. Rotimi, Ph.D. Professor, Genetic Epidemiology
Acting Director, National Human Genome Center Howard University

11:15 – 11:45 The UK Biobank (Real Video)
John Newton, Ph.D.
Chief Executive Officer UK Biobank

11:45 – 12:25   Federal Perspectives on the Need for a Large Population Study

Ruth Brenner, M.D., M.P.H.
National Institute of Child Health and Human Development  (Real Video)

Stephan D. Fihn M.D., M.P.H.
Department of Veterans Affairs (Real Video)

Alan Guttmacher, M.D.
National Human Genome Research Institute (Real Video)

Muin J. Khoury, M.D., Ph.D.
Centers for Disease Control and Prevention (Real Video)

12:25 – 1:00 Roundtable Discussion with Session Participants (Real Video)
Facilitator: Huntington Willard Ph.D., Large Population Studies Task Force Chair

1:00 p.m. – 2:00 p.m. LUNCH

2:00 – 2:45 Committee Discussion and Next Steps  (Real Video)
Facilitator: Dr. Willard

2:45 p.m. – 3:00 p.m. Public Comments (Real Video)

3:00 p.m. – 3:30 p.m. Summary Report from the Conference on Promoting Quality Laboratory Testing for Rare Diseases: Follow-up and Future Activities (Real Video)
D. Joseph Boone, Ph.D.
Assistant Director for Science, Division of Laboratory Systems Centers for Disease Control and Prevention

Stephen C. Groft, Pharm.D.
Director NIH Office of Rare Diseases

3:45 p.m. – 4:00 p.m. Closing Remarks (Real Video)
Dr. Tuckson