[NIH SACGHS Webcasts]
[8 July 2008]
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Secretary’s Advisory Committee on Genetics, Health, and Society

Sixteenth Meeting
July 7-8, 2008
Washington, D.C.



Tuesday, July 8, 2008


Session on Personal Genome Services


8:00 a.m. – 8:15 a.m.              Overview of Session and Introductions  (Real Video)

Sylvia Mann Au, M.S., CGC

                                                SACGHS Member


8:15 a.m. – 8:45 a.m.               The Science of Genomic Associations:  Current Status and Future Directions (Real Video)
Teri Manolio, M.D., Ph.D.,

Director, Office of Population Genomics

Senior Advisor to the Director, NHGRI for Population Genomics


            8:35-8:45                    Q&A  (Real Video)


8:45 a.m. – 9:15 a.m.               Personal Genomic Information:  A Consumer’s Perspective (Real Video)

David Ewing Duncan

Director, Center for Life Science Policy

University of California at Berkeley


            9:05-9:15                     Q&A  (Real Video)


9:15 a.m. – 9:30 a.m.               BREAK


9:30 a.m. – 10:20 a.m.             Personal Genome Service Providers


9:30-9:40                     Dietrich Stephan, Ph.D.  (Real Video)

Co-Founder and Chief Science Officer



9:40-9:50                     Linda Avey (Real Video)




            9:50-10:00                   Jeffrey Gulcher, M.D., Ph.D. (Real Video)

                                                Chief Scientific Officer



            10:00-10:10                 George Church, Ph.D.  (Real Video)

Personal Genome Project

Knome, Inc.

Director, Center for Computational Genetics  

                                                Harvard Medical School


Discussion with Secretary Leavitt  (Real Video)

Michael Leavitt


U.S. Department of Health and Human Services


10:10-10:20                 Ryan Phelan (Real Video)

Founder and CEO

DNA Direct  


10:20 a.m. – 11:00 a.m.           Roundtable Discussion with Personal Genome Service Providers (Real Video)


11:00 a.m. – 11:30 a.m.           Public Policy Issues Surrounding Personalized Genome Services (Real Video)

Kathy Hudson, Ph.D.


Genetics and Public Policy Center


            11:20-11:30                 Q&A  (Real Video)


11:30 a.m. – 12:30 p.m.          Committee Discussion of Personal Genome Services (Real Video)


12:30 p.m. – 1:15 p.m.                        LUNCH


1:15 p.m. – 1:45 p.m.             Public Comments  (Real Video)


1:45 p.m. – 2:05 p.m.              Presentation of Proposed Action Plan of SACGHS Task Force on Education and Training

Barbara Burns McGrath, R.N., Ph.D.

Chair, Task Force on Education and Training


2:05 p.m. – 3:00 p.m.              Continued Discussion of Plan for Next Steps in Priority Setting Process

Dr. Wise


3:00 p.m.                                Concluding Remarks

Dr. Teutsch