[NIH SACGHS Webcasts]
[8 July 2008]
[7 July 2008]
[13 Feb 2008]
[12 Feb 2008]

Secretary’s Advisory Committee on Genetics, Health, and Society

Sixteenth Meeting
July 7-8, 2008
Washington, D.C.

Morning Session Before Break  (Real Video) Morning Session After Break  (Real Video) Afternoon Session After Lunch  (Real Video) Caption Text (HTML) NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH web site in due course. WEBCASTS: To view live webcasts and the video-on-demand files you will need the free Real Player from Real Networks. Follow the link to the free player on the top right of the screen.

Tuesday, July 8, 2008

Session on Personal Genome Services

8:00 a.m. – 8:15 a.m.              Overview of Session and Introductions  (Real Video)

Sylvia Mann Au, M.S., CGC

                                                SACGHS Member

8:15 a.m. – 8:45 a.m.               The Science of Genomic Associations:  Current Status and Future Directions (Real Video)
Teri Manolio, M.D., Ph.D.,

Director, Office of Population Genomics

Senior Advisor to the Director, NHGRI for Population Genomics

            8:35-8:45                    Q&A  (Real Video)

8:45 a.m. – 9:15 a.m.               Personal Genomic Information:  A Consumer’s Perspective (Real Video)

David Ewing Duncan

Director, Center for Life Science Policy

University of California at Berkeley

            9:05-9:15                     Q&A  (Real Video)

9:15 a.m. – 9:30 a.m.               BREAK

9:30 a.m. – 10:20 a.m.             Personal Genome Service Providers

9:30-9:40                     Dietrich Stephan, Ph.D.  (Real Video)

Co-Founder and Chief Science Officer

Navigenics

9:40-9:50                     Linda Avey (Real Video)

                                    Co-Founder

23andMe

            9:50-10:00                   Jeffrey Gulcher, M.D., Ph.D. (Real Video)

                                                Chief Scientific Officer

deCODEme  

            10:00-10:10                 George Church, Ph.D.  (Real Video)

Personal Genome Project

Knome, Inc.

Director, Center for Computational Genetics  

                                                Harvard Medical School

Discussion with Secretary Leavitt  (Real Video)

Michael Leavitt

Secretary

U.S. Department of Health and Human Services

10:10-10:20                 Ryan Phelan (Real Video)

Founder and CEO

DNA Direct  

10:20 a.m. – 11:00 a.m.           Roundtable Discussion with Personal Genome Service Providers (Real Video)

11:00 a.m. – 11:30 a.m.           Public Policy Issues Surrounding Personalized Genome Services (Real Video)

Kathy Hudson, Ph.D.

Director

Genetics and Public Policy Center

            11:20-11:30                 Q&A  (Real Video)

11:30 a.m. – 12:30 p.m.          Committee Discussion of Personal Genome Services (Real Video)

12:30 p.m. – 1:15 p.m.                        LUNCH

1:15 p.m. – 1:45 p.m.             Public Comments  (Real Video)

1:45 p.m. – 2:05 p.m.              Presentation of Proposed Action Plan of SACGHS Task Force on Education and Training

Barbara Burns McGrath, R.N., Ph.D.

Chair, Task Force on Education and Training

2:05 p.m. – 3:00 p.m.              Continued Discussion of Plan for Next Steps in Priority Setting Process

Dr. Wise

3:00 p.m.                                Concluding Remarks

Dr. Teutsch     

ADJOURN