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Secretary’s Advisory Committee on Genetics, Health, and Society

Twentieth Meeting
October 8-9, 2009
Washington, D.C.

Morning Session Before Break  (Real Video)

Morning Session After Break  (Real Video)

Afternoon Session After Lunch  (Real Video)

Afternoon Session After Break  (Real Video)

Real Media To view the video-on-demand files you will need the free Real Player from Real Networks. Follow the link to the free player on the top right of the screen.

Caption Text (html)

NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A transcript will be available on the NIH web site in due course.

Thursday, October 8, 2009

8:30 a.m. – 8:45 a.m. Opening Remarks  (Real Video)
Steven Teutsch, M.D., M.P.H.
Genetic Information Nondiscrimination Act 
8:45 a.m. – 10:45 a.m. Update on the Implementation of the Genetic Information Nondiscrimination Act (Public Law 110-233)  (Real Video)
8:45 a.m. – 9:30 a.m. Title I—Genetic Nondiscrimination in Health Insurance

Employment-based Group Market Provisions (Real Video)
Amy Turner, J.D.
Senior Advisor and Special Projects Manager 
Employee Benefits Security Administration
Department of Labor 
Russ Weinheimer
Internal Revenue Service
Department of Treasury
Individual Insurance Market Provisions (Real Video)

Adam Shaw (to be confirmed)
Centers for Medicare & Medicaid Services
Department of Health and Human Services

Privacy and Confidentiality (Real Video)

Robinsue Frohboese, J.D., Ph.D.
Principal Deputy Director
Christina Heide, J.D.
Senior Health Information Privacy Policy Specialist
Office for Civil Rights
Department of Health and Human Services

9:30 a.m. – 9:55 a.m. Title II—Prohibiting Employment Discrimination on the Basis of Genetic Information (Real Video)
Kerry Leibig, J.D.
 Senior Attorney Advisor
 Office of Legal Counsel
 Equal Employment Opportunity Commission
9:55 a.m. – 10:45 a.m. Committee Discussion (Real Video)
10:45 a.m. – 11:00 a.m.  BREAK
Gene Patents and Licensing Practices 
11:00 a.m. – 11:45 a.m. Overview of Report, Summary of Public Comments on Draft Report, and Session Goals
James P. Evans, M.D., Ph.D.
(Real Video)
11:45 a.m. – 12:30 p.m.  LUNCH
Public Comment Session

12:30 p.m. – 2:00 p.m.  Public Comments (Real Video)
Gene Patents and Licensing Practices
2:00 p.m. – 3:00 p.m.  Discussion of Final Draft Recommendations
Facilitators: Dr. Teutsch and Dr. Evans
3:00 p.m. – 3:15 p.m.  BREAK
3:15 p.m. – 5:50 p.m.  Discussion of Final Draft Recommendations (continued)
5:50 p.m. – 6:00 p.m. Closing Remarks – Dr. Teutsch