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Secretary’s Advisory Committee on Genetics, Health, and Society

Twentieth Meeting
October 8-9, 2009
Washington, D.C.

Morning Session Before Break (Real Video)

Morning Session After Break (Real Video)

Afternoon Session After Lunch (Real Video)

Real Media To view the video-on-demand files you will need the free Real Player from Real Networks. Follow the link to the free player on the top right of the screen.

Caption Text (html)

NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A transcript will be available on the NIH web site in due course.

Friday, October 9, 2009

8:00 a.m. – 8:10 a.m. Opening Remarks 
Dr. Teutsch
Genomic Data Sharing 
8:10 a.m. – 9:00 a.m. Discussion of Initial Steps for the SACGHS Priority Topic on Ethical Issues Related to Genomic Data Sharing (Real Video)
Charmaine Royal, Ph.D.
Genetics Education and Training
9:00 a.m. – 9:30 a.m. Update on the Draft Report on Genetics Education and Training: Literature and Survey Findings and Preliminary Conclusions   (Real Video)
Barbara Burns McGrath, R.N., Ph.D. 
9:30 a.m. – 10:00 a.m. Committee Discussion to Frame Draft Recommendations   (Real Video)
10:00 a.m. – 10:15 a.m.  BREAK
Public Comment Session
10:15 a.m. – 10:45 a.m.  Public Comments (Real Video)
Direct-to-Consumer Genetic Testing
10:45 a.m. – 11:00 a.m. Presentation of Revised Draft Paper on Direct-to-Consumer Genetic Testing (Real Video)
Sylvia Au, M.S., CGC
11:00 a.m. – 12:30 p.m. Committee Discussion and Decisions Regarding Revised Draft Paper on Direct-to-Consumer Genetic Testing  (Real Video)
12:30 p.m. – 1:30 p.m.  LUNCH
Gene Patents and Licensing Practices
1:30 p.m. – 2:45 p.m.  Reaching Consensus on Final Draft Recommendations and Draft Report   (Real Video)
Facilitators: Dr. Teutsch and Dr. Evans
2:45 p.m. – 3:00 p.m.   Concluding Remarks (Real Video)
– Dr. Teutsch