NIH SACGHS - October 20, 2005

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National Institutes of Health


	Secretary’s Advisory Committee on Genetics, Health, and Society Eighth Meeting October 19 - 20, 2005 North Bethesda , MD Morning Session Before Break (Real Video) Morning Session After Break (Real Video) Afternoon Session - After Lunch (Real Video) Afternoon Session - After Break (Real Video) CAPTION TEXT (HTML) NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH web site in due course. A G E N D A Wednesday, October 20, 2005 Genetic Discrimination Session Intro - REAL VIDEO 8:30 a.m. – 8:45 a.m. Update on the Status of the Genetic Information Nondiscrimination Act of 2005 (S. 306/H.R. 1227) Sharon F. Terry, M.A. - REAL VIDEO Coalition for Genetic Fairness 8:45 a.m. – 9:15 a.m. Public Attitudes toward Advances in Genetics, Genetic Privacy and the Potential Misuse of Genetic Information - REAL VIDEO Ms. Christy White Cogent Research 9:15 a.m. – 9:30 a.m. Q&A and Committee Discussion - REAL VIDEO Pharmacogenomics Session 9:30 a.m. – 9:45 a.m. Update from the SACGHS Task Force on Pharmacogenomics - REAL VIDEO Emily S. Winn-Deen, Ph.D. SACGHS Task Force Chair 9:45 a.m. – 10:05 a.m. Update from FDA - REAL VIDEO Steven I. Gutman, M.D., M.B.A. Director, Office of In Vitro Diagnostics U.S. Food and Drug Administration Allen Rudman, Ph.D. - REAL VIDEO Associate Director, Office of Clinical Pharmacology and Biopharmaceutics Center for Drug Evaluation and Research, FDA 10:05 a.m. – 10:30 a.m. Q&A and Committee Discussion - REAL VIDEO Facilitator: Dr. Winn-Deen 10:30 a.m. – 10:45 a.m. BREAK 10:45 a.m. – 11:00 a.m. Public Comments - REAL VIDEO 11:00 a.m. – 11:25 a.m. Feasibility of Integrating Pharmacogenomics into Drug Development from an Economic Perspective - REAL VIDEO Thomas A. Metcalfe Head of Biomarker Program F. Hoffmann-La Roche Ltd 11:25 a.m. – 11:50 a.m. Economic Challenges of Integrating Pharmacogenomics intoClinical Practice Kathryn Phillips, Ph.D. - REAL VIDEO Professor of Health Economics and Health Services Research Director, Program in Pharmacogenomics and Population Screening University of California, San Francisco 11:50 a.m. – 12:15 p.m. Q&A and Committee Discussion - REAL VIDEO Facilitator: Dr. Winn-Deen 12:15 p.m. – 1:15 p.m. LUNCH 1:15 p.m. – 1:45 p.m. Ethical and Social Issues Associated with Using Race and Genetics in the Study of Differential Drug Response - REAL VIDEO Wylie Burke, M.D., Ph.D. Professor and Chair, Department of Medical History and Ethics University of Washington 1:45 p.m. – 2:15 p.m. Q&A and Committee Discussion - REAL VIDEO Facilitator: Dr. Winn-Deen 2:15 p.m. – 3:15 p.m. Discussion of Next Steps, Work Plan, and Final Work Product for Pharmacogenomics Facilitators: Dr. Winn-Deen and Ms. Berry - REAL VIDEO 3:15 p.m. – 3:30 p.m. Planning for March 2006 SACGHS Meeting and Concluding Remarks Ms. Berry - REAL VIDEO ADJOURN
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