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National Institutes of Health

Secretary’s Advisory Committee on Genetics, Health, and Society

Eighth Meeting
October 19 - 20, 2005
North Bethesda , MD

Morning Session Before Break  (Real Video)

Morning Session After Break  (Real Video)

Afternoon Session - After Lunch  (Real Video)

Afternoon Session - After Break  (Real Video)

NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH web site in due course.


Wednesday, October 20, 2005

Genetic Discrimination Session

                                               Intro - REAL VIDEO


8:30 a.m. – 8:45 a.m.                 Update on the Status of the Genetic Information Nondiscrimination Act of 2005 (S. 306/H.R. 1227)

                                                Sharon F. Terry, M.A. - REAL VIDEO

                                                Coalition for Genetic Fairness


8:45 a.m. – 9:15 a.m.                 Public Attitudes toward Advances in Genetics, Genetic Privacy and the Potential Misuse of Genetic Information  - REAL VIDEO

                                                Ms. Christy White

                                                Cogent Research


9:15 a.m. – 9:30 a.m.                 Q&A and Committee Discussion - REAL VIDEO


Pharmacogenomics Session


9:30 a.m. – 9:45 a.m.                 Update from the SACGHS Task Force on Pharmacogenomics  - REAL VIDEO

Emily S. Winn-Deen, Ph.D.

SACGHS Task Force Chair


9:45 a.m. – 10:05 a.m.               Update from FDA - REAL VIDEO

Steven I. Gutman, M.D., M.B.A.

Director, Office of In Vitro Diagnostics

U.S. Food and Drug Administration


Allen Rudman, Ph.D. - REAL VIDEO

Associate Director, Office of Clinical Pharmacology and Biopharmaceutics

Center for Drug Evaluation and Research, FDA


10:05 a.m. – 10:30 a.m.              Q&A and Committee Discussion - REAL VIDEO

                                                Facilitator:  Dr. Winn-Deen


10:30 a.m. – 10:45 a.m.              BREAK


10:45 a.m. – 11:00 a.m.              Public Comments - REAL VIDEO


11:00 a.m. – 11:25 a.m.              Feasibility of Integrating Pharmacogenomics into Drug
                                                Development from an Economic Perspective - REAL VIDEO

                                                Thomas A. Metcalfe

                                                Head of Biomarker Program

                                                F. Hoffmann-La Roche Ltd


11:25 a.m. – 11:50 a.m.              Economic Challenges of Integrating Pharmacogenomics intoClinical Practice

                                                Kathryn Phillips, Ph.D. - REAL VIDEO

                                                Professor of Health Economics and Health Services Research

                                                Director, Program in Pharmacogenomics and Population Screening

                                                University of California, San Francisco


11:50 a.m. – 12:15 p.m.              Q&A and Committee Discussion - REAL VIDEO

                                                Facilitator:  Dr. Winn-Deen


12:15 p.m. – 1:15 p.m.               LUNCH


1:15 p.m. – 1:45 p.m.                 Ethical and Social Issues Associated with Using Race and Genetics in the Study of Differential Drug Response - REAL VIDEO

                                                Wylie Burke, M.D., Ph.D.

Professor and Chair, Department of Medical History and Ethics

University of Washington


1:45 p.m. – 2:15 p.m.                 Q&A and Committee Discussion - REAL VIDEO

                                                Facilitator:  Dr. Winn-Deen


2:15 p.m. – 3:15 p.m.                 Discussion of Next Steps, Work Plan, and Final Work Product for Pharmacogenomics

                                                Facilitators:  Dr. Winn-Deen and Ms. Berry - REAL VIDEO


3:15 p.m. – 3:30 p.m.                 Planning for March 2006 SACGHS Meeting and Concluding Remarks

                                                Ms. Berry - REAL VIDEO