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National Institutes of Health

 

Secretary’s Advisory Committee on Genetics, Health, and Society

 

Thirteenth Meeting

Tuesday, July 10, 2007

Washington, D.C.

 

 

CAPTION TEXT (HTML)
NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH web site in due course.

 

 

AGENDA

 

 

8:30 a.m. – 8:40 a.m.                 Opening Remarks  (Real Video)

Reed V. Tuckson, M.D.

                                                SACGHS Chair

 

8:40 a.m. – 8:50 a.m.                 Update on the Development of the SACGHS Pharmacogenomics Report   (Real Video)

Kevin T. FitzGerald, S.J., Ph.D., Ph.D.

                                                SACGHS Pharmacogenomics Task Force Chair

 

8:50 a.m. – 9:50 a.m.                 Report from the SACGHS Task Force on the Oversight of Genetic Testing   (Real Video)

                                              Marc S. Williams, M.D.

                                              SACGHS Oversight Task Force Member

 

Session on Gene Patents and Licensing Practices

 

9:50 a.m. – 10:05 a.m.               Opening Remarks  (Real Video)

James P. Evans, M.D., Ph.D.

                                                SACGHS Gene Patents Task Force Chair

 

10:05 a.m. – 10:25 a.m.              Update on U.S. Patent Reform Initiatives   (Real Video)
Judge Pauline Newman

                                                Circuit Judge U.S. Court of Appeals for the Federal Circuit

 

10:25 a.m. – 10:35 a.m.              Q & A

 

10:35 a.m. – 10:50 a.m.              BREAK

 

International Roundtable on Gene Patents and Licensing Practices

 

10:50 a.m. – 11:20 a.m.              Overview of the International Gene Patents & Licensing Practices Landscape (Real Video)

                                                Richard Gold, S.J.D, LL.M., LL.B.

                                                Director, Centre for Intellectual Property Policy

                                                McGill University

                                               

11:20 – 11:35                 Q & A

 

11:35 a.m. – 12:45 p.m.              Intellectual Property and National Health Systems: Case Studies of

BRCA Testing in Canada and the United Kingdom  (Real Video)

 

11:35 – 12:00                 BRCA Testing in Canada   (Real Video)

Richard Gold, S.J.D, LL.M., LL.B.

                                                Director, Centre for Intellectual Property Policy

                                                McGill University

 

12:00 – 12:25                 BRCA Testing in the United Kingdom  (Real Video)

Shobita Parthasarathy, Ph.D.

                                                Assistant Professor, Public Policy

Gerald R. Ford School of Public Policy

University of Michigan

                                               

12:25 – 12:45                Q & A  (Real Video)

 

Public Comments

 

12:45 p.m. – 1:05 p.m.               Public Comments  (Real Video)

 

1:05 p.m. – 1:45 p.m.                 LUNCH

 

Session on Gene Patents and Licensing Practices (continued)

1:45 p.m. – 2:50 p.m.                Comparison of the Patent System of the U.S. and Select Countries

1:45 – 2:10                   Joseph Straus, Ph.D.  (Real Video)

Professor of Law, University of Munich

Director, Max-Planck-Institute for Intellectual Property,

Competition and Tax Law

Chairman, Managing Board of the Munich Intellectual Property Law Center

 

2:10 – 2:35                    Bhaven Sampat, Ph.D.  (Real Video)

                                                Assistant Professor of Health Policy and Management

International Center for Health Outcomes and Innovation Research

Columbia University School of Public Health

 

2:35 – 2:50                    Q & A  (Real Video)

 

2:50 p.m. – 3:00 p.m.                 BREAK

 

3:00 p.m. –4:10 p.m.                 International Reports and Recommendations Regarding Gene Patents, 
Licensing Strategies, and Genetic Tests

 

3:00 – 3:25                    John Barton, J.D.  (Real Video)

                                                George E. Osborne Professor of Law, Emeritus

Stanford Law School

           

 

 

3:25 – 3:50                    Christina Sampogna, LL.M.  (Real Video)

                                    Administrator

                                                Organisation for Economic Co-Operation and Development

                                               

3:50 – 4:10                    Q & A  (Real Video)

                                               

4:10 p.m. – 4:40 p.m.                 Patents Discussion/Next Steps  (Real Video)

 

Session on Direct-to-Consumer Marketing of Genetic Tests

 

4:40 p.m. – 4:55 p.m.                 Public Health Surveillance of Awareness and Use of
Direct to Consumer Genetic Testing   (Real Video)

Katrina A.B. Goddard, Ph.D.

Fellow, National Office of Public Health Genomics, CDC

Associate Professor, Epidemiology & Biostatistics

Case Western Reserve University

 

4:55 p.m. – 5:00 p.m.                 Closing Remarks  (Real Video)

 

 

ADJOURN

 

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