[NIH SACGHS Webcasts]
[10 July 2007]
[27 Mar 2007]
[26 Mar 2007]
[14 Nov 2006]
[13 Nov 2006]
[28 Mar 2006]
[27 Mar 2006]
[20 Oct 2005]
[19 Oct 2005]
[16 June 2005]
[15 June 2005]
[1 Mar 2005]
[28 Feb 2005]
[19 Oct 2004]
[18 Oct 2004]
[15june2004]
[14june2004]
[2 March 2004]
[1 March 2004]
[12 June 2003]
[11 June 2003]
[23 Oct 2003]
[22 Oct 2003]

National Institutes of Health

Secretary’s Advisory Committee on Genetics, Health, and Society

Twelfth Meeting

March 26 - 27, 2007

Adelphi, MD

CAPTION TEXT (HTML)
NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH web site in due course.

• Morning Session Before Break  (Real Video)
• Morning Session After Break  (Real Video)
• Afternoon Session - After Lunch  (Real Video)

F I N A L    A G E N D A

(Click here to view or download Agenda in Adobe PDF format)

Tuesday, March 27, 2007

8:00 a.m. – 8:10 a.m.                 Opening Remarks  (Real Video)

                                                Dr. Tuckson

Session on Gene Patents and Licensing Practices

8:10 a.m. – 8:20 a.m.                 Overview of Session  (Real Video)

Jim Evans, M.D., Ph.D.

Task Force Chair

8:20 a.m. – 9:00 a.m.                 Primer on Intellectual Property  (Real Video)

                                                Jorge Goldstein, J.D., Ph.D.

                                                Director

                                                Sterne, Kessler, Goldstein & Fox                       

8:50 –9:00                     Q & A

Session on Gene Patents and Licensing Practices (continued)

9:00 a.m. – 9:50 a.m.                 Primer on Intellectual Property Licenses and Transfer Agreements  (Real Video)

9:00 – 9:20                    Federal Sector Role

                                                Claire Driscoll

                                                Director

Technology Transfer Office

National Human Genome Research Institute

9:20 – 9:40                  Private Sector Role  (Real Video)

Lin Sun-Hoffman, Ph.D., J.D.
Senior Patent Attorney

Applied Biosystems – An Applera Corporation Business

9:40 – 9:50                    Q & A

9:50 a.m. – 10:05 a.m.               BREAK

                                                Public Testimony (Real Video) 

10:05 a.m. – 10:55 a.m.              Policy Primer on Patents Related to Genetic Testing  (Real Video)

                                                Robert Cook-Deegan, M.D.

Director

Center for Genome Ethics, Law, and Policy

Institute for Genome Sciences and Policy

Duke University School of Medicine

10:45 – 10:55                 Q & A

10:55 a.m. – 11:35 a.m.              Update on the Status of the SACGHS Study  (Real Video)

                                                Dr. Evans

Dr. Cook-Deegan

Christopher Conover, Ph.D.

Assistant Research Professor of Public Policy

Terry Sanford Institute of Public Policy

Duke University

11:35 a.m.  – 12:30 p.m.             Committee Discussion

Public Comments

12:30 p.m. – 12:45 p.m.              Public Comments

12:45 p.m. – 1:45 p.m.               LUNCH

Proposals for New SACGHS Study Priorities

1:45 p.m. – 2:15 p.m.                 Economic Consequences of Genomic Innovations  (Real Video)

                                                Steven M. Teutsch, M.D., M.P.H.

                                                SACGHS Member

2:15 p.m. – 2:45 p.m.                 Evaluation of Real-World Outcomes of Gene-based Applications  (Real Video)

                                                Gurvaneet Randhawa, M.D., M.P.H.

                                                AHRQ Ex Officio

                                                Muin J. Khoury, M.D., Ph.D.

CDC Ex Officio

2:45 p.m. – 3:15 p.m.                 Committee Discussion (Real Video)

3:15 p.m. – 3:45 p.m.                 Next Steps and Concluding Remarks (Real Video)

                                                Dr. Tuckson     

                                                ADJOURN