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National Institutes of Health


Secretary’s Advisory Committee on Genetics, Health, and Society


Fourteenth Meeting

November 20, 2007

Washington, D.C.



Morning Session Before Break  (Real Video)

Morning Session After Break  (Real Video)

Afternoon Session After Lunch  (Real Video)

NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH web site in due course.




Tuesday, November 20, 2007


8:30 a.m. – 8:40 a.m.               Opening Remarks (Real Video)

                                              Dr. Tuckson


8:40 a.m. – 9:00 a.m.               Presentation of Certificates (Real Video)



Roundtable on Genetics Education and Training of Health Professionals


9:00 a.m. – 9:10 a.m.                  Overview of Session (Real Video)

                                                Barbara Burns McGrath, R.N., Ph.D.

                                                Research Associate Professor

University of Washington School of Nursing


9:10 a.m. – 9:30 a.m.                  Overview of Education Initiatives for Health Professionals (Real Video)

Joseph McInerney, M.A., M.S.

Executive Director

National Coalition for Health Professional Education in Genetics


Q & A (Real Video)


9:30 a.m. – 9:50 a.m.                  Progress in Integrating Genetics into Primary Care  (Real Video)

Norman Kahn, Jr., M.D.

Vice President for Science and Education

American Academy of Family Physicians


Q & A  (Real Video)


9:50 a.m. – 10:10 a.m.                Nursing Competencies and Genetics Training (Real Video)

Elizabeth Pestka, M.S.

Assistant Professor of Nursing

Mayo Clinic College of Medicine


Q & A (Real Video)


10:10 a.m. – 10:30 a.m.              Role of Professional Societies (Real Video)

Melissa Fries, M.D.

Director of Genetics & Fetal Medicine

Washington Hospital Center


Q & A (Real Video)


10:30 a.m. – 10:45 a.m.               BREAK


10:45 a.m. – 11:05 a.m.              Meaning of Family History (Real Video)

Angela Trepanier, M.S.

Co-Director of the Genetic Counseling Graduate Program

Department of Molecular Medicine and Genetics

Wayne State University


                                                 Q & A (Real Video)


11:05 a.m. – 11:25 a.m.               Initiatives to Train the Public Health Workforce (Real Video)

Toby Citrin, J.D.

Adjunct Professor of Health Management and Policy

Director of Community-Based Public Health

University of Michigan


Q & A


11:25 a.m. – 11:45 a.m.           Additional Perspectives 


                                                Laboratorians   (Real Video)

                        David S. Wilkinson, M.D., Ph.D.

Professor and Chair

Department of Pathology

Virginia Commonwealth University


                                                Physician Assistants (Real Video)

Michael A. Rackover, PA-C, M.S.
Program Director and Associate Professor
Physician Assistant Program
Philadelphia University


Nurses in Genetics (Real Video)

Ann K. Cashion, Ph.D., R.N.

ISONG President

Chair and Associate Professor, Acute and Chronic Care Department
Robert Wood Johnson Executive Nurse Fellow
Director, Center for Health Evaluation and Lifestyle Promotion
University of Tennessee Health Science Center


Workforce Issues (Real Video)

Judith Benkendorf, M.S.

Project Manager

American College of Medical Genetics


11:45 a.m. – 12:25 p.m.              Roundtable Discussion (Real Video)

Committee Members, Speakers and Discussants 


12:25 p.m. – 1:10 p.m.                LUNCH


Session on Oversight


1:10 p.m. – 1:20 p.m.                 Overview of Session (Real Video)

Andrea Ferreira-Gonzalez, Ph.D.

                                                Professor of Pathology and Director of Molecular Diagnostics Laboratory

Virginia Commonwealth University

1:20 p.m. – 2:20 p.m.       An International Analysis:  Enhancing the Regulation of Genetic Tests through Responsive Regulations  

                                                Stuart Hogarth (Real Video)

                                                Visiting Research Fellow

Institute for Science and Society

University of Nottingham


                                                David Melzer, M.B., B.Ch., M.Sc., Ph.D., FFPHM (Real Video)

                                                Professor of Epidemiology and Public Health

                                                Peninsula Medical School


                                                Q & A  (Real Video)


2:20 p.m. – 4:30 p.m.              Public Perspectives on the Oversight of Genetic Testing (Real Video)


4:30 p.m. – 4:50 p.m.              Committee Discussion


4:50 p.m. – 5:00 p.m.              Next Steps and Concluding Remarks (Real Video)

                                                Dr. Tuckson